geminigirl: (Beta headshot)
Part of the way SPD has manifested for Naomi is that she hates water on her face. That, combined with the proprioceptive challenges she has (also related to SPD,) has made some things, like washing her hair, very difficult. And she loves having long hair, too, so it makes washing carefully even more essential.

One of our recent, small victories at home since starting therapy is that she's been able to take a partial shower. What that means is that she is now able to stand up, lean back and wash her hair-it means less water on her face from the washing, which she loves. She doesn't want to wash the rest of her body that way (and that's fine with me,) but washing her hair standing up with her eyes closed and her head tipped back is a huge change.

She still hates getting her face wet. And she's six. And we're in a place where she's constantly surrounded by swimming pools and water, and it's beyond time to get her in the water and water safe, especially since she's now at an age where she goes places without me. So we talked about swimming lessons again, and I said that Miss Angela (our OT) can probably help us with some skills to learn how to deal with that. And we talked about how her body feels when she gets her face wet, or when she hears the blender, and she talked about her body "Louding" at her...which I think means "yelling." I explained that we can ask Miss Angela to help us find ways to make that yelling calm down, and even sometimes, make it stop. She loved this idea...so in my calendar for next week is to chat with Miss Anglea about the things that we want to do-expand her diet, become comfortable in the water, things like that. What's mindblowing is how we've seen other changes so quickly-handwriting is greatly improved, emotional regulation has grown, things like that. We'd always been able to compensate, but I'm finding that I feel calmer and more relaxed when I'm doing less managing symptoms and a lot more just enjoying things.
geminigirl: (Beta headshot)
After years of going in circles over Naomi's behavior with multiple doctors...super resetricted diet, sensory seeking behavior, attention issues, extreme reactions to small stimuli, et, leading me to suspect Sensory Processing Disorder, and her soft joints, I finally convinced her orthopedist to refer her to occupational therapy-not for any of that, but because her handwriting was atrocious, even for a kindergartener, and her stamina was really poor, too. The soft joints led to obvious fine motor issues, and so he had no hesitation writing that referral.

Mostly unsurprisingly, the therapist noticed Naomi's sensory issues, and though she can't officially diagnois the SPD, is treating Naomi for it-in essence her treatment plan includes both the fine motor skills and "poor sensory integration." There's a lot of talking in circles about whether it's worth actually going to the other doctor to get the official diagnosis, or not. It doesn't change anything, so right now it seems mostly meaningless. If we need the official, on paper stuff, then we'll do it.

But...feeding Col. Naomi has decided that she has a monster, whose name is Col. He has a boyfriend named Batha, and a girlfriend named Ashley. And the three of them eat her sillies and wiggles-she describes it as "my whole body is laughing at me, even my teeth, and I can't make it stop." Sometimes bringing her back into focus takes a few push ups or sit ups or jumping jacks (she told me this a few months ago when I asked how I could help her get ready to focus...even before we'd seen the OT.) Sometimes she likes to have a firm massage on her arms-basically, firm pressure, downward from her upper arms towards her wrists. She calls this "feeding Col." When Col gets hungry, she gets sillies and wiggles, and out of control. Today was just a rough day all around-Andy forgot to set his alarm, so we all woke up an hour late, just about the time people are supposed to leave the house, Naomi fell at the playground and scraped her knee, and I could tell, she was just "off." And after some squabbling with Miriam, I asked her if she thought she was being kind or nice? She knew right away that she wasn't, and I asked her what would help her remember. She asked me to help her feed Col, and we did feed him. And things improved after that.

I'm fortunate to have such an insightful kid-one who is so self aware and knows what she needs to get back to okay. She's still working on catching herself before she starts chewing inappropriately, but she's getting there. She is mindblowingly tuned in to her own needs and her own limits though, and it really makes it pleasant to spend time with her.

Profile

geminigirl: (Default)
geminigirl

May 2017

S M T W T F S
 123456
78910111213
141516171819 20
21222324252627
28293031   

Syndicate

RSS Atom

Most Popular Tags

Style Credit

Expand Cut Tags

No cut tags
Page generated Jul. 6th, 2025 11:04 pm
Powered by Dreamwidth Studios